…or general practitioner for more advice. Templates for Advance Directives are available on the New Zealand Medical Association and Health and Disability Commissioner websites. More information is also available on…
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Australasian MND Symposium – live blog (Day 2)
…patient population. Combination therapy – The effect of edaravone is only known in conjunction with riluzole. If edaravone was a pill, all new studies will be in combination of riluzole…
Your stories
…the State championship and the story of his team’s remarkable rise was documented in the movie Season of A Lifetime. In recognition of his superb contribution to sport and education,…
Transport and getting about
…provide outdoor mobility. It also provides grants to people with communication-related disabilities for the purchase of equipment to facilitate communication. Click here for more information. Freedom Mobility Freedom Mobility provides…
2018 Research Update: Clinical Trials
…loss. • Inflammation and microglial activation is common in neurodegenerative diseases. In MND, destructive microglial activation is accompanied by expression of pathogen-association molecular patterns and multiple damage-associated molecular patterns. •…
Australasian MND Symposium – live blog (Day 1)
…a clinical session… RESPIRATORY SESSION 2:30pm Prof Mark Howard – Non-invasive ventilation in MND, when to start and when to stop Non-invasive ventilation isn’t like taking a pill –…
Annual Reports
…Download Annual Report 2019/20 (PDF) Download Annual Report 2018/19 (PDF) Download Annual Report 2017/18 (PDF) Download Annual Report 2016/17 (PDF) Download Annual Report 2015/16 (PDF) Download Annual Report 2014/15 (PDF)…
COVID-19 Alert Level Two – what you need to know
…they will be updating their advice for disabled people for level two shortly, so keep an eye on their website here for further information. The official New Zealand Government COVID-19 website also…
Australasian MND Symposium – live blog (Day 3)
…preservation of vital capacity – dropped about one-third slower on the drug. Second generation version of tirasemtiv has been developed – CK-107. Increases force in muscles. Currently being testing in…
Life members
…in their campervan and parked at our front door for National meetings. That year I joined the Wellington Branch committee where the focus was on making it easy for people…
Newsletters
…MND News (PDF) Autumn 2021 MND News (PDF) Spring 2020 MND News (PDF) Winter 2020 MND News (PDF) Spring 2019 MND News (PDF) Autumn 2019 MND News (PDF) Spring 2018…
2018 Research Update: Clinical Management
…with MND in New Zealand. It includes advice about communicating about sensitive subjects, new respiratory research, and developments in assistive communication technology. 1. Clinical Management Golden Rules Equipment Communication Comfort…